Esther asked: I want to know if anyone has any experiences/knowledge here, such as how long do you have to be in the hospital after the surgery? What is the quality of life like after a double lung transplant? Will the I develop Cystic Fibrosis problems in the new lungs? I’m 17 and will have [...]
I Block Stupid People asked: Whenever I run or breathe erratically (like when being tickled) my lungs get fluid in them that I have to cough up. It’s not wheezing like in asthma because it’s not like my passages are constricted, it’s just the creation of thin mucus in my lungs. I have [...]
UnbiasedHealthReporter asked: Do you have Cystic Fibrosis and what do you use to expel mucus from lungs?
I have nephew 2 years old nephew just recently diagnosed with CF. doctor will not prescribe Pulmozyme saying that he is too young. What other choices we have besides chest therapies. We are using the VEST but the mucus [...]
skahhh asked: I am allergic to cats. In particular I am allergic to siamese cats, that have been known to close off my airway to breath. My daughter has an exotic cat, a playful cat, that she keeps indoors. At present she has been identified with ****** cancer and had treatments including [...]
HDPKeenan asked:
www.JasonCoverston.com Ever since I can remember people have been telling me I was going to die. I have managed to live a happy and healthy life through fitness and nutritional supplementation. My dream is to help others with Cystic Fibrosis do the same. Unfortunately I have contracted an aggressive virus – it has [...]
Evelina asked: I want to have another baby but I would like to undergo IVF because of the pre-implantation genetic testing that can be done on embryos. My twin girls have Cystic Fibrosis (a genetic disease) although they are bright and beautiful but they have lots of trouble with their lungs and digestive systems and [...]
